Rachael Manion (Executive Director)
Rachael came to the CSPA and CAPP after serving as a consultant with a public affairs firm where she supported clients in the health and life sciences sectors, including national patient organizations, to navigate the ever-changing policy, political and regulatory landscape. She appreciates the challenges facing patients when accessing treatments and brings a strategic and creative approach to advocating for better patient care.
A lawyer by background, Rachael has advised Health Canada on the regulation of health technologies, novel therapies and science policy. She has consistently supported the not-for-profit sector throughout her career, professionally and as a volunteer board member. She has worked on the front lines of healthcare in a community health centre for the street-entrenched population and in a pharmacy. She has a law degree from the University of British Columbia and an honours degree in mathematics from Dalhousie University.
Rachael is excited to be joining the patient advocacy and support community at a time when policymakers are actively recognizing its perspectives and expertise. She is looking forward to strengthening the broader skin patient communities and raising the profile of the challenges faced by patients affected by skin, hair and nail conditions.
Helen Crawford (Communication Manager)
Helen has worked for the Canadian Skin Patient Alliance since 2011 and also works for the Canadian Association of Psoriasis Patients. Helen is often the voice you hear at the end of the phone and she is committed to the work of both the CSPA and CAPP. She works alongside the CSPA team to ensure that the needs of all skin patients in Canada are being addressed. She is responsible for CAPP program management as well as managing the social media and organizational governance portfolios and is the staff lead on the Social Media Committee. She has a Bachelors degree in Linguistics from Carleton and prior to coming to the CSPA worked for the Royal Canadian Legion, Investors Group and Health Canada.
Mary Pagnotta (Stakeholder Relations and Fundraising Coordinator)
Mary Pagnotta has enjoyed a career in many diverse roles that have helped her to develop broad communications and administrative skills. Positions with Buffalo’s PBS station and with Brock University’s BrockTV.ca have allowed her to contribute to literacy programming, community outreach, and to collaborate with educators, students, artists, viewers, and community partners. Additional roles at educational institutions (secondary and college) have allowed her to lead departments devoted to development, public relations, marketing, and recruitment; she has also been a private career college instructor.
Sabrina Ribau, R.Kin (Program Manager
Sabrina has a background in case management and health promotion with a focus on mental health initiatives and support for vulnerable populations, including Veterans and individuals with mental health and addiction issues. She commits herself to improving patient advocacy and supporting clients as they navigate health care and social services resources at local, provincial, and federal levels across Canada.
A kinesiology graduate with distinction from the University of Toronto, Sabrina conducted research on social support for family members of Invictus Games participants. She is a Registered Kinesiologist and brings a biopsychosocial approach to supporting and improving client care.