If you are living with Neurofibromatosis or know someone who is, you may want to stay up-to-date on the condition as well as current treatments and news.  


There are many organizations specialized in this regard for individuals with NF1, such as:

  • Neurofibromatosis, Inc. (www.nfinc.org)
  • The Neurofibromatosis Clinics Association (www.nfpittsburgh.org)
  • The Children’s Tumor Foundation (www.ctf.org)
  • The Neurofibromatosis Association of UK (www.nfauk.org)
  • Association de la Neurofibromatose du Québec https://www.anfq.org/index.php/en/ (French only)

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