June 7-13, 2021
Up to 4% of people in Canada are impacted by hidradenitis suppurativa (HS). In recognition of HS Awareness Week 2021, the CSPA is collaborating with HS Heroes and Hidradenitis & Me to share new resources about living well with HS and educate the public about the impacts of this devastating disease.
In 2020, the CSPA released Scarred for Life: 2020 Update – A National Report of Patients’ Experiences Living with Hidradenitis Suppurativa which included critical information about getting a diagnosis, the importance of a comprehensive care approach to managing HS, experience with - and hopes for - treatments, and advice to people newly diagnosed with HS.
This year, we are building on several of the recommendations of the Scarred for Life report. Through our collaboration this year, we are excited to bring you:
- A social media awareness campaign
- A support group discussion about what a cure is to you
- Discussions with dermatologists that specialize in treating HS
- Tips and tricks on managing HS, including battlefield (at-home) wound care
- A live cooking class that focuses on avoiding foods that can trigger HS symptoms
We invite all to help us to spread the word and to participate, to become informed, and to enjoy our week-long schedule of HS Awareness Week Activities.
(All events are ET zone. Those visiting illuminations, taking photos, and participating in walks are asked to follow public health protocols.)
June 6 (Sunday) |
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Sunset - Midnight
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Edmonton High Level Bridge - Illuminated purple
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June 7 (Monday) |
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10:00 - 10:15pm
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Niagara Falls - Illuminated purple
Courtesy of the Niagara Falls Illumination Board
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June 8 (Tuesday) |
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7:00 - 8:15 pm
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Support Group: "What does the word CURE mean to you?"
is the group discussion topic.
Dr. Raed Alhusayen will speak on the importance of being open to treatment options and following through to regain hope.
Registration is required for this session. Please register using this link.
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Patient Voice Instagram Channel: HS Patient experiences will be the focus on this Instagram Channel (Tues & Thurs).
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June 9 (Wednesday) |
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June 10 (Thursday) |
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7:00 - 8:30 pm
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Cooking Class: A chef will lead a live demonstration avoiding ingredients that trigger HS symptoms.
This event requires pre-registration. Please use this link to register. |
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Patient Voice Instagram Channel: HS Patient experiences will be the focus on this Instagram Channel (Tues & Thurs).
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June 11 (Friday) |
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8:00 pm
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Mississauga City Hall Clock Tower - Illuminated purple
& Celebration Square Digital Messaging
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June 13 (Sunday) |
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Sunset - Sunrise
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Toronto CN Tower - Illuminated purple
(Between the scheduled light show on the half hour.)
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Sunset - Sunrise
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3D Toronto City Sign - Illuminated purple
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Sunset - Sunrise
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Brampton Clock Tower - Illuminated purple
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All Week |
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Walking for HS (virtual): Take and submit photos that include Signs of Hope to raise awareness. Use HS Awareness hashtags including #HSHeroes and #Walking4HS. Tag yourself and your location for an end-of-week social media montage.
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Facts, Tips & Tricks for Managing HS: Twitter conversations with dermatologists specializing in HS as well as self-care videos on social media.
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London City-Owned Buildings - Illuminated purple
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Canada Life Building Toronto - Illuminated purple
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| Guelph Market Square - Illuminated Purple | |||
HS Proclamations
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| Brampton | Burlington | Edmonton |
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| Mount Pearl | Newfoundland and Labrador | Niagara Falls |
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| Ottawa | St. John's | Toronto |
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