We salute all of our CSPA Volunteers during #National Volunteer Week and throughout the year.
CSPA is proud to have a team of approximately 70 Volunteers! Click on each image to read more about the experiences of these volunteers.
You can also click here to see how YOU can Volunteer with CSPA.
Volunteering with the CSPA
People look to CSPA to gather information, to understand, to speak for patients, and to put plans into action! As a national organization, focused on skin health as a whole, that is a pretty tall order. That is why the staff of CSPA relies on a multi-disciplined team of volunteers to stay informed and proactive about developments in dermatology, research, legislation, medication access, education, advocacy and how skin patients are being affected.
At CSPA, we know the value of our volunteers, and we welcome new and returning individuals who wish to contribute their knowledge and skills to initiatives that benefit the skin patient community. Administration, goal-setting, finance, medical advice, and informative writing are just some of the ways volunteers make a difference. If you are impacted by skin disorders or have the desire to learn about and advocate for our patient community, we want to hear from you!
Board of Directors
Members of the Board of Directors ensure that the organization is moving forward and achieving its mission and vision. Members oversee the organization’s operations and financial well-being. They help guide the organization by establishing CSPA’s strategic direction, ensuring compliance and managing risks to the organization. Board members may also be involved in specific CSPA projects. Board Members must be 18 years of age and are asked to serve for a period of two years, with a maximum of 6 years.
Members of this sub-committee monitor the public policy landscape at the provincial and federal level as it affects skin patients. They identify opportunities for the CSPA to shape public policy and help implement advocacy strategies and tactics. The Advocacy Committee welcomes those with experience in legislative affairs, legal or grassroots advocacy and those with knowledge of the issues facing the skin patient community in Canada. Approximately 2-3 hours per month will be asked of sub-committee members who volunteer to help develop advocacy materials.
Affiliate Members Sub-Committee
This sub-committee develops strategies to better serve and engage the CSPA Affiliate Member organizations. They brainstorm ideas to improve communications, assess needs and identify potential Affiliate Members. They also provide input regarding CSPA’s advocacy strategy.
This goal of this sub-committee is to expand social media engagement across Canada, ensure key messages are being shared, promote events and discuss relevant issues that are important to the skin patient community, and stay current with communications trends. Members may choose to provide moderator support on social channels and provide input on the website and other communication tools. If you have knowledge of social media platforms and best practices, strong communication and marketing skills, graphic design skills and creativity, this is a great opportunity to volunteer in support of skin patients.
The Finance Sub-Committee
This Sub-Committee makes recommendations to the Board of Directors about the accounting, financial reporting, financial health and sustainability and related legal obligations of the CSPA. They review annual financial statements, regular financial reports, including revenue and expenditures, fund development, and the proposed annual budget. In addition to being organized and detail oriented, CSPA welcomes those with business, not-for-profit or finance experience to this sub-committee.
Fund Development Sub-Committee
This group develops and revises CSPA’s Fundraising Plan and identifies new potential funders and revenue sources for the organization. They provide recommendations to the Board of Directors on funding and identify opportunities to promote the CSPA’s initiatives in collaboration with the Communications Sub-Committee. Those with business, not-for-profit or marketing experience are a great asset to this team.
All CSPA sub-committee members serve for a period of two years and can serve for an unlimited number of consecutive terms. These committees meet virtually and may meet in person if it is safe and the opportunity arises.
Medical Advisory Board
The members of CSPA’s Medical Advisory Board (MAB) represent a cross-section of experts in the field of dermatology from across the country. Members must be credentialed medical or scientific professionals and will be identified based on their:
- Knowledge or expertise of skin conditions and diseases
- Area(s) of work or research
- Geographic location and familiarity with regional health systems
- Demonstrated commitment to patient care, and
- Ability and interest to work with patient organizations.
Members of the Medical Advisory Board support CSPA with the provision of medical and scientific advice and guidance related to the organization’s planning and decision-making and the development and publication of electronic and print resources, guides and supports (“resources”) made available to the CSPA community and others through the CSPA website, Canadian Skin and À Pro Peau magazines, and multimedia communication channels.
The Medical Advisory Board may also be called upon to summarize new scientific publications and provide input into CSPA’s strategic direction as it relates to medical issues. Members recommend names of other experts, act as a resource to clinicians in developing a clinician input submission to the Common Drug Review (CADTH), provide advice regarding research directions and may act as an expert resource for media interviews.
Individuals will be invited by the CSPA to participate on the Medical Advisory Board and will be asked to serve for a period of two years. They can serve for an unlimited number of consecutive terms.
CSPA enlists the talents of healthcare professionals, medical students, and experts in various fields to write or summarize educational content related to skin health. Volunteers may be involved in special projects that require the drafting of educational pieces, research summaries, resources and tools for skin, hair, and nail patients across Canada. They may also contribute content to the CSPA website, its social media channels, and to CSPA’s publication the Canadian Skin and À Pro Peau magazines.
The CSPA's fiscal year runs from July 1st to June 30th. Below are the annual reports highlighting the CSPAs activities as presented at our AGM
Current Annual Report
Principles of Working with the Pharmaceutical Industry
The CSPA is proud to work with a variety of funders, all with the goal to improve the quality of life for Canadians living with skin diseases, conditions and traumas. This includes many pharmaceutical companies that play the crucial role of bringing new treatments for dermatological conditions to the market.
Recognizing the value that pharmaceuticals bring to skin patients and to avoid conflicts of interest, the CSPA follows guiding principles with regards to interactions with the pharmaceutical industry:
The CSPA welcomes the opportunity to partner with pharmaceutical companies, with honesty, transparency and accountability at the core of all relationships.
- We will always put the best interests of people living with skin diseases, conditions and traumas first.
- The CSPA will be transparent about its relationship(s) with pharmaceutical companies to all stakeholders and list all funders on our website.
- We believe that patients should be informed about all treatment options and will endeavour to do so, but we will not endorse any specific medication or course of treatment.
- The CSPA will accept funds from pharmaceutical companies provided that there is an agreement about the nature of the funding and that the CSPA owns any and all intellectual property. The company will not influence directly or indirectly any content or communications as a result of the funding.
The Canadian Skin Patient Alliance recognizes the important contribution of all of its sponsors. However, this is in no way an endorsement of any product or treatment. The CSPA is solely responsible for all content in our publications and online.
The CSPA fully endorses the Canadian Consensus Framework for Ethical Collaboration developed by Innovative Medicines Canada in collaboration with the Health Charities Coalition of Canada, Best Medicines Coalition, the Canadian Medical Association, the Canadian Nurses Association and the Canadian Pharmacists Association.